Links
For more information, here is a list of links to bleeding and clotting disorders organizations’ web sites, as well as involved government agencies.
Organizations:
American Society of Hematology (ASH) www.hematology.org
Hemophilia & Thrombosis Research Society of North America: www.HTRS.org
Hemophilia Federation of America: www.hemophiliafed.org
Hemophilia Foundation of Michigan: www.hfmich.org
Hemophilia of Indiana chat room: http://health.groups.yahoo.com/group/hemophilia_of_indiana
Hemophilia of Indiana: www.hemophiliaofindiana.org
National Hemophilia Foundation: http://www.hemophilia.org
HANDI: http://www.hemophilia.org/resources/handi.htm
National Notification Center: http://www.notify1.com
National Organization of Rare Disorders: http://www.rarediseases.org
The International Society on Thrombosis and Heamostasis: http://www.med.unc.edu/isth
World Federation of Hemophilia: www.wfh.org
von Willebrand disease: http://www.allaboutbleeding.com
Manufacturers:
Baxter: http://www.baxter.com & Hemophilia Galaxy: http://www.hemophiliagalaxy.com
Bayer: www.bayer.com
Grifols: www.grifolsusa.com
Novo Nordisk: http://www.novonordisk.com
Wyeth: www.wyeth.com
ZLB Behring: www.zlbbehring.com
Government Agencies:
Association of Hemophilia Clinic Directors of Canada (AHCDC): http://ahcdc.medical.org
Canadian Hemophilia Society: http://www.hemophilia.ca
National Heart Lung and Blood Institute (NHLBI) www.nhlbi.nih.gov/
Centers for Disease Control and Prevention, Hematologic Diseases Branch: http://www.cdc.gov/ncbddd/default.htm
Health Resources and Services Administration — Maternal and Child Health Bureau: http://mchb.hrsa.gov
Indiana State Department of Health: http://www.in.gov/isdh
Other Resources:
Bloodline.com - The Online Resource for Hematology Education and News:
http://www.bloodline.com
Doctor's Guide: Medical Conferences & Meetings: http://www.pslgroup.com/dg/haemato.htm
Medscape: http://www.medscape.com/px/urlinfo
Haemostasis Forum: www.haemophilia–forum.org
St. Vincent Hospital: www.stvincent.org
Medical Journals and References:
Blood Coagulation & Fibrinolysis: www.bloodcoagulation.com
Blood www.bloodjournal.org
British Journal of Haemotology: http://www.blackwellpublishing.com/journal.asp?ref=0007-1048
Haemophilia: http://www.blackwellpublishing.com/journal.asp?ref=1351-8216&site=1
Journal of Thrombosis & Haemostasis: www.blackwellpublishing.com
Thrombosis & Haemostasis www.schattauer.de/zs/startz.asp?load=/zs/thromb/main.asp
Thrombosis Research: www.elsevier.com/locate/thromres
Sickle Cell:
The Sickle Cell Information Center: www.scinfo.org
Sickle Cell Disease Association of America: http://www.sicklecelldisease.org
Thrombosis:
Canadian Society of Atherosclerosis, Thrombosis and Vascular Biology: http://www.csatvb.ca/index.htm
European Thrombosis Research Organization: http://www.etro.med.unideb.hu/
Health Care Information Resources: http://www-hsl.mcmaster.ca/tomflem/top.html
Investigators Against Thromboembolism: http://www.inate.org
Thrombosis Consult: http://www.thrombosis-consult.com/home.htm
Other:
Platelet Disorder Support Association: http://www.itppeople.com
