Sickle Cell Disease Support for All Stages of Life

Patients with sickle cell disease and their families may experience the impact of repeated and unpredictable pain episodes, chronic pain, chronic anemia, and easy fatigue.

These pain episodes may cause absenteeism from school and work, hospitalizations, and fear of early death, or other concerns. There is no consistently effective, widely accepted treatment for sickle cell disease. The prognosis is uncertain, and complications are variable and often not measurable (as in vaso-occlusive pain).

In addition to our highly trained medical staff, and to enable living well with sickle cell disease , IHTC has the following staff available to help provide patient and family support:

Life Events and Stages

IHTC has designed some specific care programs to give you or your child the best opportunity to live a normal life. Some programs are age-specific, while others are helpful at any age.

Travel Letters

The IHTC will develop a travel letter for you or your child that includes personalized medical information, as well as care recommendations to use if problems occur while traveling.

Tips for Emergency Care

Not every care provider may be familiar with the treatment of sickle cell disease. Download and keep our emergency care guide to help educate providers in these situations.

Navigating Childhood with Sickle Cell Disease

If your child has sickle cell disease, giving him or her the best care possible is your top priority. At the IHTC, we have expertly-trained pediatric hematologists and other service providers on staff to give you and your child the support and guidance you need throughout life.

Learn more abut caring for your child with sickle cell disease

Navigating Adulthood with Sickle Cell Disease

The IHTC’s doctors, counselors, and other providers are here to guide you throughout all stages of life, whether you are transitioning into the workforce, planning for a family, and much more.

Learn more about adult sickle cell disease care