Expert Vascular Malformation Treatment

Indiana Hemophilia & Thrombosis Center (IHTC)’s Hemangioma, Vascular and Lymphatic Malformations (HVLM) Clinic is committed to providing expert care for infants, children, and teens with hemangiomas and congenital vascular and lymphatic anomalies. We coordinate with national experts to provide the best possible treatments and access to the latest research.

HVLM Clinic care programs include:

  • High-level, coordinated care for patients with vascular anomalies
  • Medical therapies
  • Coordination between required specialties such as ENT, plastic surgery, dermatology, ophthalmology, radiology, and surgery
  • Access to IHTC’s onsite expert multidisciplinary team members including a physical therapist, genetic counselor, dietitian, dental hygienist, social worker, psychologist, child life services, and academic/career counselor
  • Access to apply for national research studies
  • Prompt communication with primary care providers

Conditions Treated

Lymphatic or blood vessels that have not developed normally often present at birth or shortly after that as discolored skin lesions or swellings. They are commonly known as birthmarks or hemangiomas. Subtypes of these conditions fall under two major groups.

Vascular Tumors

  • Strawberry Hemangioma
  • Infantile Hemangioma
  • Hemangiomas of Infancy
  • Kaposiform Hemangioendothelioma
  • Tufted Hemangioma
  • Epithelioid Hemangioendothelioma

Vascular Malformations of Capillaries

  • Port Wine Stain
  • Stork’s Patch
  • Angel’s Kiss
  • Salmon Patch/Nevus Flammeus

Vascular Malformations of Veins

  • Venous Malformation

Vascular Malformations of Arteries

  • AVMs
  • AV Fistulas

Vascular Malformations of Lymphatics

  • Lymphangioma
  • Cystic Hygroma

Vascular Malformations of a Combination of Blood Vessels

  • Klippel Trenaunay Syndrome
  • Parks-Weber Syndrome
  • PROTEUS Syndrome
  • PHACE Syndrome
  • CLOVES Syndrome
  • Sturge-Weber Syndrome

Treatments Offered

  • Propranolol for infantile hemangiomas
  • Sirolimus (Rapamune) for complex venous and lymphatic malformations
  • Anticoagulation to prevent clotting in at-risk vascular lesions
  • Physical therapy consultation for custom made compression garments for venous and lymphatic anomalies
  • Information about local resources
  • Guidance on lesions involving limbs and impaired mobility
  • Care coordination with other specialists for:
    • Sclerosing injections for venous and lymphatic malformations performed by interventional radiology.
    • Pulsed dye laser and intralesional steroids performed by dermatology.
    • Surgical removal of lesions by pediatric and plastic surgery
    • Laser treatment for airway and oral hemangiomas performed by ear/nose/throat surgeons
    • Debulking surgery for various lesions of limb overgrowth syndromes performed by orthopedic specialists
    • Treatment for infected vascular lesions, vascular lesions causing heart failure, vascular lesions located in the brain, or vascular lesions associated with genetic syndromes provided by pediatric infectious disease, cardiology, neurology, and genetic specialists

HVLM Clinic Hours and Location

Clinic hours are 8:00 am to 5:00 pm, Monday through Friday.

Indiana Hemophilia & Thrombosis Center, Inc.
8326 Naab Road
Indianapolis, IN 46260

Make an Appointment

317.871.0000 or 877.CLOTTER (877.256.8837)